Our case manager will work with you and your family to plan your discharge
from the hospital. Some patients may need to spend some time in an
inpatient rehabilitation facility, or a skilled nursing facility, to regain
their strength before they return home. Some patients may leave the
transplant floor on Farr 10 and go directly home, with the help of visiting
nurses in their community. But in most instances, your family will be able
to provide the help you need after discharge. Your caregivers and case
manager will help you decide which option is right for you, and make any
Home at Last!
When you have recovered enough to be at home safely, have learned how to
care for yourself, and your new pancreas function is stable, you will be
ready to head home! Remember, you have traveled a long, sometimes rough
road to reach this point. You may feel anxious, frightened and overwhelmed.
It will take some time for your energy level to get back to normal and for
you to get used to the routines you need to follow to stay well.
Call your transplant team if you have any questions or concerns. And refer
frequently to the written material we gave you at discharge and to the
information on this web site.
One Day at a Time
Although other people may assume you are "fine" now that the surgery is
over, remember that you need to be patient during this recovery phase and
follow the advice of your doctors and nurses. You will feel better as time
goes on, but it will take a while. You may have some setbacks and feel
discouraged. Share your feelings with your family, others who are close to
you, and your doctors and nurses. If you are concerned about what you are
feeling, talk to the transplant social worker or psychologist. They will
help you work through these feelings.
The transplant team has made sure you are well prepared to be at home. If
you have any questions or concerns, never hesitate to call us - your
doctor, nurse coordinator or social worker. You have a lot of information
to learn and understand, and we always are here to help.
Before you leave the hospital, we will schedule a follow-up appointment for
you with a transplant surgeon or physician. It is very important to keep
this appointment and future appointments so that we can check your
progress, review your medications, and do certain laboratory tests to be
sure you and your new organ are doing well. You may need blood tests at a
laboratory near home, and/or at the hospital, between visits as well. We
may order other tests, such as X-rays or a biopsy, at certain times, too.
Your visits will follow a set schedule:
Once a week for the first 1 to 3 months;
Then every two weeks;
Moving to once a month;
Eventually once every 6 to 8 weeks, and finally
Once every 3 to 6 months
You also may have appointments with your diabetologist, nephrologist,
gastroenterologist or primary care physician.
Medicines and Your Medication Card
You left the hospital with a medication card that describes the names of
the medicines you are taking, what dose to take, and when to take them. At
your follow-up visits, your doctor and transplant nurse coordinator will
review your medications and discuss any concerns you have, including side
effects. Because medications are sometimes adjusted to achieve the best
results with the fewest side effects, please bring you medication card to
your follow-up appointments to record any changes.
Here are some important things to remember about taking your medication:
Keep your follow-up appointments and complete any lab work or
additional tests your transplant team schedules.
Take your medications exactly as instructed.
Make every effort to take your anti-rejection medications, as well as
your other medications, at the same time every day.
If you missed or threw up a dose of your anti-rejection medicine and do
not know what to do, call your transplant team.
Do not use any over-the-counter medicines without checking first with
your doctor or nurse.
Do not use alcohol, cocaine, heroin or marijuana, as they can put your
transplant at risk.
Do not smoke. If you do smoke, make every effort to quit.
Call the transplant team if you have any concerns about your medicines.
Call if you have the slightest change in your condition, even if it is
just a question. The earlier you call, the sooner we can address any
evolving medical situation.
Telephone 617-632-9700, Monday through Friday, from 8 a.m. to 5
p.m. Call the same number after hours if you have an urgent
question and the operator will connect you to the transplant
coordinator on call.
As a courtesy to our transplant nurse coordinators, please call
for non-urgent issues during regular business hours. They will
respond promptly, but please do be patient because they may be
attending to other emergencies. For URGENT issues feel free to
call anytime and a transplant nurse coordinator will call you
back promptly and can contact the transplant physician or
surgeon immediately if necessary.
For any prescription refills, please call only during regular
Bring your medication card with you to all of your follow-up
For more tips about taking your medications, including organizing your
medications and traveling with medicine, link here.
More about Medication after your Transplant
It is important for you to learn as much as you can about your medications.
To help you, we have developed a number of patient information sheets
describing the medications commonly prescribed after transplant surgery,
and a "test" you can take to review your knowledge. The patient information
sheets listed below include, among other details, how to take the
medication and common side effects:
Your Daily Record
The transplant team will give you a chart to take home with you. Write down
information about your:
Incision and tube site
Blood sugars twice daily
The nurses on the transplant unit taught you how to take these vital signs
while you were in the hospital. It is important to keep an accurate record.
It will help you identify early signs if there is a problem, and allow your
doctors and nurses to monitor your progress.
In order to fill in the information on your daily record sheet consistently
and accurately you must:
Take your temperature once a day at the same time of day
Weigh yourself at the same time every day on the same scale wearing the
same amount of clothing
Check your incision and tube site for an increase in redness and
Measure the amount of fluid draining from your tube site if you have
Test your blood sugar two times a day: in the morning (this is called a
fasting blood sugar) and in the late afternoon
Be sure to write down all of this information every day. And bring your
daily record to your follow-up appointments at the Transplant Center.