TAKE HOME MESSAGES:

  • The symptoms listed above are not unique to celiac disease and can occur with other disorders and diseases.
  • If you or your doctor recognize your symptoms in the list above (or in Level 2), consider getting tested for celiac disease.
  • If you suspect celiac disease, do not start a gluten-free diet on your own until you have consulted with a gastroenterologist and have been tested.
  • Early diagnosis and effective treatment of celiac disease greatly improves your health outcomes and reduces the risks of complications from untreated disease.

References:

  1. Green PH, Cellier C. Celiac Disease. N Eng J Med. 2007;357(17):1731-43.
  2. Aybar A. A Global Disease: The Iceberg Dilemma. In Real Life with Celiac Disease: Troubleshooting and Thriving Gluten-Free . Eds. Dennis M, Leffler D. AGA Press. Bethesda, MD, 2010.
  3. Beth Israel Deaconess Medical Center Celiac Center. General FAQ about Celiac Disease.   Accessed August 11, 2011.
  4. Makharia GK, Verma AK, Armachand R et al. Prevalence of celiac disease in the northern part of India: a community-based study. J Gastroenterol Hepatol. 2011;26(5):894-900.
  5. Dalgic B, Sari S, Bastruk B et al. Prevalence of celiac disease in healthy Turkish school children. Am J Gastroenterol. 2011;106(8):1512-7.
  6. Israeli E, Hershcovic T, Grotto I et al. Prevalence of celiac disease in an adult Jewish population in Israsel. Isr Med Assoc J. 2010;12(5):266-9.
  7. National Institutes of Health Publication No. 08-4269 September 2008. Accessed August 11, 2011.
  8. Kelly C. Common and Uncommon Presentations of Celiac Disease. In Real Life with Celiac Disease: Troubleshooting and Thriving Gluten-Free . Eds. Dennis M, Leffler D. AGA Press. Bethesda, MD, 2010.
  9. Cooper Bt, Holmes GK, Ferguson R et al. Gluten-sensitive diarrhea without evidence of celiac disease. Gastroenterology. 1981;81:192-194.
  10. Newnham ED. Does gluten cause gastrointestinal symptoms in subjects without coeliac disease? J Gastroenterol Hepatol. 2011;26:132-34.
  11. Leffler D. Gluten Intolerance: You Mean I Don't Have Celiac Disease? In Real Life with Celiac Disease: Troubleshooting and Thriving Gluten-Free . Eds. Dennis M, Leffler D. AGA Press. Bethesda, MD, 2010.
  12. Biesiekierski JR, Newnham ED, Irving PM et al. Gluten causes gastrointestinal symptoms in subjects without celiac disease: a double-blinded randomized placebo-controlled trial. Am J Gastroenterol. 2010; 106(3):508-14.
  13. Up to Date. Pathogenesis, epidemiology, and clinical manifestations of celiac disease in adults. Accessed October 9, 2011.
  14. University of Chicago Celiac Disease Center Impact Newsletters 2008; 8(1). Accessed August 11, 2011.

    Revision Date: 10-31-12
    Authors: Melinda Dennis, MS, RD, LDN and Annie Peer
    Editors: Suzanne Simpson, RD and Rupa Mukherjee, MD

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