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Resource Guide for Myelodysplastic Syndrome (MDS)

En Español (Spanish Version)

Main Page | Risk Factors | Reducing Your Risk | Screening | Symptoms | Diagnosis | Treatment Overview | Chemotherapy | Surgical Procedures | Other Treatments | Lifestyle Changes | Managing Side Effects | Living With Myelodysplastic Syndrome | Talking to Your Doctor | Resource Guide

American Cancer Society (ACS)

  • Phone: 1-800-ACS-2345
  • Internet address: http://www.cancer.org
  • Description of services provided: The American Cancer Society is a nationwide organization with more than 3,400 local offices. This site provides information on preventing cancer, saving lives, and diminishing suffering from cancer. Here you will also find information on research, education, advocacy, and service.

The Association of Cancer Online Resources (ACOR)

  • Internet address: http://www.acor.org/
  • Description of services provided: This site offers publications, disease-specific information, clinical trial information, mailing lists, and lists of caregiver and referral services.

Cancer Care, Inc

  • Address: 275 7th Avenue New York, NY 10001
  • Phone: 1-212-712-8400 1-800-813-HOPE (4673)
  • Internet address: http://www.cancercare.org/
  • Description of services provided: Cancer Care Inc. provides free professional help to people with all forms of cancer through counseling, education, information, referral, and direct financial assistance.

National Cancer Institute

  • Address: NCI Public Inquiries Office Suite 3036A 6116 Executive Boulevard, MSC 8322 Bethesda, MD 20892-8322
  • Phone: 1-800-4-CANCER (1-800-422-6237)
  • Internet address: http://cancer.gov/
  • Description of services provided: The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS.

The American Society of Hematology

  • Address: 1900 M Street, NW, Suite 200 Washington, DC 20036
  • Phone: 202-776-0544
  • Internet address: http://www.hematology.org/
  • Description of services provided: The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.

The Myelodysplastic Syndromes (MDS) Foundation

  • Address: PO Box 353 Crosswicks, NJ 08515
  • Phone: 1-800-MDS-0839 1-609-298-6746 (outside US)
  • Internet Address: http://www.mds-foundation.org/
  • Description of services provided: Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. The "Patient Information" page covers Medicare, government assistance, medication assistance, as well as information on medications. You can also find a patient handbook and other articles.

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