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Resource Guide for Myelodysplastic Syndrome (MDS)

En Español (Spanish Version)

Main Page | Risk Factors | Reducing Your Risk | Screening | Symptoms | Diagnosis | Treatment Overview | Chemotherapy | Surgical Procedures | Other Treatments | Lifestyle Changes | Managing Side Effects | Living With Myelodysplastic Syndrome | Talking to Your Doctor | Resource Guide

American Cancer Society

  • Address: National Home Office 250 William Street NW Atlanta, GA 30303
  • Phone: 1-800-227-2345
  • Internet address:
  • Description of services provided: The American Cancer Society provides educational information about all types of cancer, and news and research resources for patients, their families, and caregivers. Live chat via Internet is available to get information and support. The site also provides access to clinical trial information and treatment centers. Volunteer, donation, and fundraising information are also available.

National Cancer Institute

  • Address: BG 9609 MSC 9760 9609 Medical Center Drive Bethesda, MD 20892-9760
  • Phone: 1-800-422-6237
  • Internet address:
  • Description of services provided: The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS.

The MDS Foundation

  • Address: 4573 South Broad Street Suite 150 Yardville, NJ 08620
  • Phone: 1-800-MDS-0839 (inside US) 609-298-1035 (outside US)
  • Internet Address:
  • Description of services provided: Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. You can also find a patient handbook and other articles.

American Society of Hematology

  • Address: 2021 L Street NW Suite 900 Washington, DC 20036
  • Phone: 202-776-0544
  • Internet address:
  • Description of services provided: The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.

Association of Cancer Online Resources (ACOR)

  • Address: 173 Duane Street Suite 3A New York, NY 10013-3334
  • Phone: 212-226-5525
  • Internet address:
  • Description of services provided: This site offers publications, disease-specific information, clinical trial information, mailing lists, and lists of caregiver and referral services.

Cancer Care

  • Address: 275 Seventh Avenue New York, NY 10001
  • Phone: 212-712-8400 1-800-813-4673
  • Internet address:
  • Description of services provided: Cancer Care provides free professional help to people with all forms of cancer through counseling, education, information, referral, and direct financial assistance.

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