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Celiac Center

CeliacNow - New Website is NOW LIVE:


> Do you have celiac disease or non-celiac gluten sensitivity?

> Are you getting the proper nutrition?

> Do you have questions about the fine details of the gluten-free diet?

> Are you concerned about dining out and cross contamination?


The expert clinicians of the Celiac Center are launching www.CeliacNow.org, a multi-leveled nutrition website for the management of celiac disease. It's full of concise, correct information that you need to maximize your health and well-being.

The new site will replace much of the information you have seen here for the past few years and it will continue to grow. You can still come here to read about the Celiac Center Team and general announcements.

Our new web site is now live at:

www.CeliacNow.org

The Clinicians of the Celiac Center
BIDMC


The BIDMC Celiac Center


The BIDMC Celiac Center is the only multidisciplinary center in New England specializing in the care of patients with celiac disease and other gluten sensitive disorders. Internationally recognized experts -gastroenterologists, nutritionists and experts in allergy, bone health and endocrinology - have extensive experience in managing all aspects of celiac disease including treatment of refractory sprue.

Specialists integrate diagnosis and treatment with nutritional counseling, and attention to bone health and other food allergies and intolerances, in a coordinated approach. The center excels at evaluating patients where the diagnosis of celiac disease is difficult to confirm. Staff include experienced gastrointestinal pathologists to aid in differential diagnosis.

Patients who show a poor response to treatment with a gluten-free diet represent a large proportion of patients referred to the center for expert evaluation and treatment. Physicians use enteroscopy and capsule endoscopy to evaluate patients with suspected complications of celiac disease.

Patients benefit from direct access to state-of-the-art knowledge on the latest advances in celiac disease research through the Celiac Center's leading researchers, with a focus on novel non-dietary treatments.

Education Evening on Celiac Disease

Join us for our 2012 informal "Round Table" Discussions on living with celiac disease and the gluten free diet hosted by the Celiac Center at Beth Israel Deaconess Medical Center. This event is open to our patients and the public. 

From Celiac Center, BIDMC - On the Release of Domino's Gluten Free Pizza - May 2012

Recently Domino's Pizza introduced a "gluten free" pizza to its consumers. While we appreciate the efforts of the restaurant industry to work to meet the needs of the gluten-free community, we do not recommend this pizza for our patients with gluten related disorders.

The risk of cross contamination (when gluten free food comes in contact with utensils, surfaces or foods that contain gluten) is too high in such products and can cause serious consequences for those who must follow the gluten free diet for medical reasons.

We respectfully request all food manufacturers to market products that meet the proposed FDA definition of gluten free (tested to below 20ppm gluten) and to uphold the strong efforts being made nationwide to protect this population.

To read a statement by the North American Society for the Study of Celiac Disease, please visit this link:

http://www.nasscd.org/wp-content/uploads/2012/05/NASSCD-Statement-on-Dominos-Pizza.pdf


Sincerely,

Clinicians of the Celiac Center
Beth Israel Deaconess Medical Center
Boston, MA

A book on celiac disease written by 50 clinical experts:

Real Life with Celiac Disease: Troubleshooting and Thriving Gluten Free

The Celiac Center @ BIDMC and the American Gastroenterological Association present a book on celiac disease with answers from leading experts around the world. Click this link for details!

Now available for sale in the Friendship Shop on the East Campus (by the cafeteria).

New Celiac Antibody Lab Test to be Used at BIDMC

anti-Deamidated Gliadin Peptide (DGP) antibody test replaces anti-Gliadin antibody test (AGA)

The Celiac Center is pleased to announce an important improvement in our in-house celiac disease tests. As of August 1, 2009, we will no longer offer the traditional IgA anti-gliadin antibody (AGA) test, a test commonly ordered in the recent past, but which has very limited accuracy.

Several years ago, BIDMC began offering, as its primary celiac serology test, IgA Anti-Tissue Transglutaminase (IgA-tTG), whose sensitivity and specificity (measures of accuracy) are excellent (~95%). Even so, there are occasional individuals whose IgA anti-tTG results may be misleading. In this case, we recommend using a newer test, anti-DGP (IgG and IgA antibodies to deamidated gliadin peptide), which will now be offered in house in place of AGA.

The current recommendations for use of these tests by physicians are:

  • For the vast majority of celiac screening and follow-up cases, we will continue to use just IgA anti-tTG.
  • We will order total IgA levels in conjunction with the initial anti-tTG in every patient. IgA deficiency is more common among celiac patients than in the general population (i.e., more than 1 in 400 individuals). IgA deficiency will cause a falsely negative IgA-tTG. IgA levels are extremely cost-effective compared to other celiac blood tests (e.g., anti-DGP), which should be ordered if IgA deficiency is established.

Physicians will consider using anti-DGP in the following situations:

  • In cases of known IgA deficiency for initial evaluation for celiac disease
  • In cases of known IgA deficiency with celiac disease to monitor response to gluten free dietary therapy
  • When IgA anti-tTG is normal in patients with villous atrophy (mucosal damage in the small intestine)
  • In patients with a moderate to high risk of celiac disease but a normal IgA anti-tTG to guide a decision regarding need for endoscopy and biopsy
  • In patients with a low risk of celiac disease, a normal anti-tTG but a positive AGA.

The anti-DGP, like all other celiac blood tests, normalizes on a gluten free diet. If your ttg is normal and you have been following a gluten free diet, the anti-DGP is likely to be normal, as well. You must be on a gluten containing diet in order for this test to be useful for diagnosis.

If you have any questions about this new lab test, please discuss it with your physician.

GLUTEN-FREE FOOD AT BIDMC

As of January 1, 2008, the East and West Campus cafeterias at BIDMC will carry several selections of gluten-free frozen meals, cookies and rice cakes for our visitors following the gluten-free diet. Please ask the server for them at the heated entrees section of the cafe. You will be given a sealed container which you can microwave yourself in the cafe.

GLUTEN FREE MEALS FOR OUR INPATIENT VISITORS:

For our inpatient guests, the Food Service Department is pleased to offer a varied selection of gluten free breads, muffins, soups, entrees and cookies to make the hospital stay more comfortable and enjoyable. Patients can order room service for all of their meals and can request to speak with a diet technician with any questions about the gluten free products on the menu.

GLUTEN-FREE SNACKS FOLLOWING GI PROCEDURES:

As of December 1, 2007, individuals will be able to request gluten free rice cakes (and/or juice) following certain GI procedures in Farr 8 (west campus) and Stoneman 1 buildings (east campus). Be sure to identify yourself as following the gluten free diet to the nurse or staff member to ensure that you are offered a gluten free snack.

Contact Information

Celiac Disease Center
Beth Israel Deaconess Medical Center
East Campus, Dana 601
330 Brookline Avenue
Boston, MA 02215
617-667-1272

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