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Resources for Women with Metastatic Breast Cancer

Posted 1/11/2014

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  Women with advanced/metastatic/Stage IV breast cancer often feel like the forgotten part of our world. When the popular emphasis (especially during Pink October) is so much on early detection and "cures" and happy beautiful women who seem not even mildly disturbed by their illness, it is tempting for most people to overlook the reality that not everyone with breast cancer does well. Any one woman's prognosis depends upon her particular situation--and a little bit of luck. Overall, however, the reality is that 20-30% of all women diagnosed with breast cancer (remember this is very stage specific) go on to eventually have metastatic disease.

  There are increasing numbers of excellent resources and supports for them. If you are in the Boston area, you are invited to contact me about my weekly group for women with advanced breast cancer. It is a truly wonder and special group of women who give one another endless support and affection. We are planning our first retreat for women with advanced cancer and are very excited about this opportunity to spend two days with others in similar circumstances. Here are the details:

March 9-March 11 at Wonderwell Mountain Retreat Center in Springfield, New Hampshire. Activities will include gentle yoga, meditation, focused discussions, creative arts, walks, snow shoeing, cross country skiing, lots of time to relax and get to know one another better. The cost is $108/day, including three meals. Please be in touch asap if you are interested.

There are a number of good websites that will quickly appear if you Google "metastatic breast cancer." Be aware that some are funded by pharma, and look at those a bit more critically. A few to look at include:

http://www.advanced-breast-cancer.com

http://mbcn.org/

http://www.cancer.gov/cancertopics/factsheet/Sites-Types/metastatic

This is information and a link to Living Beyond Breast Cancer's section; it is especially good:

Welcome to lbbc.org's website community for women living with metastatic breast cancer. We are dedicated to assisting you, and these pages offer easy access to a wealth of cutting-edge information specific to your needs.

In this community, you can read about the latest news on advanced disease, treatments and updates on clinical trials. Use the navigation bar on the left to quickly and easily access the topics of interest to you.

We hope the information and support offered in this section brings you comfort and enables you to make informed decisions regarding your physical and emotional health.

http://www.lbbc.org/Audiences/Metastatic-Breast-Cancer





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