Coping with Tests
Periodic scans or other tests are one part of cancer that rarely gets easier. It is just as nerve-wracking the 3rd or 4th or 10th CT Scan as it was the first. Each time, there is the anxiety about the results and the difficulty of the waiting for that answer. If you have had several good scans, rather than thinking: "It will likely be fine because the others were", you may be thinking "Bet my luck has run out."
The tests themselves may be unpleasant and waiting for results may be psychological torture. Coping with tests rarely gets easier with time and many people are anxious both prior to and after the appointment. There are a lot of tips about dealing with needles, MRI machines, CT scans, etc. Talk to other patients, ask your nurse for suggestions, and ask the techs what other patients have found helpful. The claustrophobic nature of MRI machines is the most common challenge, and may be eased by wearing an eye mask, asking the technician to keep talking, having someone stay with you and keep a hand on your head or feet, or using “prism glasses” that enable you to see out. Remember the immense value of anti-anxiety medications for these moments. As long as you are not driving, it is probably fine to take a small dose of something like ativan. Ask your doctor.
Some people find drinking the "milkshakes" before a CT scan to be one of the worst parts of the day. Ask your doctor if it is really necessary. It may be ok to drink less or even drink none of it; this depends on the part of your body being scanned and your own history with the tests.
However hard the test itself may be, it will be concluded, and you then enter the period of anxiously awaiting news. The single most important piece of advice is to discuss this with your doctor before the test. You need to know how you will be informed, and you need to make this plan prior to the test day. Is it best to wait until your scheduled appointment, perhaps a week or more distant, and know that you will hear nothing in the interim? Would you prefer that your doctor call you with results, whether they are good or bad, as soon as possible? If you want a phone call, can you be called at work or on your cell phone? May your doctor leave a message if you can’t be reached? May a message be left with your spouse or other specific family member? May she leave a message on your machine? (This one is tricky. If you don’t want to hear bad news on your voice mail, tell her not to leave the results, good or bad, but to say they are ready and to call her back. Then remind yourself that the instructions were not to leave any kind of news.) If your doctor is unable to call you, is it okay if a covering doctor or nurse makes the call or would you rather wait for a familiar voice?
Once the plan is established, think about the wait. The key words are “Stay busy and distracted.” Set up time to be with friends, watch movies, exercise daily, and schedule at least one self-indulgent treat. If you know you won’t hear anything until you see your doctor, this could be a good time to get out of town for a few days. Warn your family and close friends in advance that you will need their loving support, invitations, and understanding if you seem distracted or prickly. Remind yourself, over and over, that, whatever the results may be, you are in trusted medical hands and there will be good advice for your care. Remember, too, that “It is what it is” and all the worry in the world won’t change a thing.