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Posted 6/9/2014

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  I am on the Board of NAPBC (National Accreditation Program for Breast Centers), and chair a committee that is responsible for working with advocacy groups. As a committee project, we have just compiled this extensive list of resources for women with metastatic breast cancer. In truth, almost all of the listed sites are useful for anyone with breast cancer.

Metastatic Breast Cancer Resources:

Cancer Survivors Network (CSN) -

Metastatic Breast Cancer Alliance -

The Legacy Project -
Through my eyes -
Metastatic Breast Cancer Network -
METAvivor -

Living Beyond Breast Cancer:
living Beyond Breast Cancer is dedicated to assisting you, whether you are newly diagnosed with metastatic breast cancer or are in ongoing treatment. We are also here for your family members, caregivers, friends and healthcare providers to provide breast cancer information and support. visit for recent news and resources or to view our Metastatic Breast Cancer series online. to request hard copies, call (610) 645-4567.
In addition to written resources, lBBC provides a Helpline, a peer-to- peer support service staffed by volunteers living with many breast cancer diagnoses. the Helpline can be reached at (888) 753-LBBC (5222).
More information available on or in print:
Metastatic Breast Cancer Series: Treatment Options for
Today and Tomorrow 
Metastatic Breast Cancer Series: Managing Stress and Anxiety Metastatic Breast Cancer Series: Understanding Palliative Care
Metastatic Breast Cancer Network:
The Metastatic Breast Cancer Network, a national, patient-led organization, works to raise awareness of metastatic breast cancer within the breast cancer community and public. MBCN encourages women and men living with the disease to raise their voices to demand support, resources and more research for metastatic disease.
MBCN provides education and information to metastatic people and their caregivers. visit or call (888) 500-0370 to access education, support and advocacy resources.
More information available on
Diagnosis: Metastatic Breast Cancer...What does it mean for you? Get the Facts Brochure 
Are you living with MBC? Flyer

Breast Cancer Action:
 Breast Cancer Fund:
National Breast Cancer Coalition: National Coalition for Cancer Survivorship: Patient Advocate Foundation:
 Research Advocacy Network:
 Stand Up To Cancer:
Caregiving support
lotsa Helping Hands: 
National Family Caregivers Association:
Clinical trials
 CCR Clinical Trials at NIH: CenterWatch Clinical Trials listing Service:
ENACCT (Education Network to Advance Cancer Clinical Trials):
 National Cancer Institute:
Coalition of Cancer Cooperative Groups:
Family resources
Group loop: (Teens)
 Jack and Jill late Stage Cancer Foundation: (Families)
Kids Konnected:, (800) 899-2866
Memories of love Foundation:
Men Against Breast Cancer:
Mommy’s light lives On:
Mothers Supporting Daughters with Breast Cancer:
Financial Concerns
Association of Community Cancer Centers: Brenda Mehling Cancer Fund: (ages 18-40) Cancer Financial Assistance Coalition: Centers for Medicare and Medicaid Services:
Joe’s House:
 Patient Services, Inc.:
Social Security Disability Information:
General information and support
Abramson Cancer Center of the University of Pennsylvania:
American Cancer Society:, (800) 227-2345 Association of Cancer Online Resources:
CancerCare:, (800) 813-4673
 Cancer Support Community:, (888) 793-9355
 Healing Circle:
Healing Journeys:
 SHARE:, (866) 891-2392
Susan G. Komen for the Cure:, (877) 465-6636 Triple-Negative Breast Cancer Foundation:, (877) 880-8622
 Wellspring Cancer Support:
Legal information
Cancer legal Resource Center:
Metastatic Breast Cancer 
living Beyond Breast Cancer: Breast-Cancer, (888) 753-lBBC (5222)
Metastatic Breast Cancer Network:
MetaCancer Foundation:
Patient Power: Understanding Advanced Breast Cancer Series: metastatic-breast-cancer
Young women
Annual Conference for Young Women Affected by Breast Cancer:
Stupid Cancer:
Planet Cancer:
Sharsheret:, (866) 474-2774
 Young Adult Cancer Canada:
Young Survival Coalition:, (877) 972-1011


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