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Posted 6/9/2014

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  I am on the Board of NAPBC (National Accreditation Program for Breast Centers), and chair a committee that is responsible for working with advocacy groups. As a committee project, we have just compiled this extensive list of resources for women with metastatic breast cancer. In truth, almost all of the listed sites are useful for anyone with breast cancer.

Metastatic Breast Cancer Resources:

Cancer Survivors Network (CSN) - http://csn.cancer.org/

Metastatic Breast Cancer Alliance - http://www.mbcalliance.org/

The Legacy Project - http://www.cancersupportivecare.com/Legacy/intro.html
Through my eyes - http://www.thrumyeyes.org/
www.advanced-breast-cancer.com
www.MBCtreatmentoption.com
Metastatic Breast Cancer Network - http://mbcn.org/support-resources/category/support
METAvivor - http://www.metavivor.org/


Living Beyond Breast Cancer: lbbc.org
living Beyond Breast Cancer is dedicated to assisting you, whether you are newly diagnosed with metastatic breast cancer or are in ongoing treatment. We are also here for your family members, caregivers, friends and healthcare providers to provide breast cancer information and support. visit lbbc.org for recent news and resources or to view our Metastatic Breast Cancer series online. to request hard copies, call (610) 645-4567.
In addition to written resources, lBBC provides a Helpline, a peer-to- peer support service staffed by volunteers living with many breast cancer diagnoses. the Helpline can be reached at (888) 753-LBBC (5222).
More information available on lbbc.org or in print:
Metastatic Breast Cancer Series: Treatment Options for
Today and Tomorrow 
Metastatic Breast Cancer Series: Managing Stress and Anxiety Metastatic Breast Cancer Series: Understanding Palliative Care
Metastatic Breast Cancer Network: mbcn.org
The Metastatic Breast Cancer Network, a national, patient-led organization, works to raise awareness of metastatic breast cancer within the breast cancer community and public. MBCN encourages women and men living with the disease to raise their voices to demand support, resources and more research for metastatic disease.
MBCN provides education and information to metastatic people and their caregivers. visit mbcn.org or call (888) 500-0370 to access education, support and advocacy resources.
More information available on mbcn.org:
Diagnosis: Metastatic Breast Cancer...What does it mean for you? Get the Facts Brochure 
Are you living with MBC? Flyer


Advocacy
Breast Cancer Action: bcaction.org
 Breast Cancer Fund: breastcancerfund.org
National Breast Cancer Coalition: breastcancerdeadline2020.org National Coalition for Cancer Survivorship: canceradvocacy.org Patient Advocate Foundation: patientadvocate.org
 Research Advocacy Network: researchadvocacy.org
 Stand Up To Cancer: standup2cancer.org
Caregiving support
CarePages.com
 CaringBridge.org
lotsa Helping Hands: lbbc.lotsahelpinghands.com 
National Family Caregivers Association: thefamilycaregiver.org
Clinical trials
BreastCancerTrials.org
 CCR Clinical Trials at NIH: bethesdatrials.cancer.gov CenterWatch Clinical Trials listing Service: CenterWatch.com ClinicalTrials.gov
ecancertrials.com
 EmergingMed.com
ENACCT (Education Network to Advance Cancer Clinical Trials): enacct.org
 National Cancer Institute: cancer.gov/clinicaltrials
Coalition of Cancer Cooperative Groups: cancertrialshelp.org
Family resources
Group loop: grouploop.org (Teens)
 Jack and Jill late Stage Cancer Foundation: jajf.org (Families)
Kids Konnected: kidskonnected.org, (800) 899-2866
Memories of love Foundation: memoriesoflove.org
Men Against Breast Cancer: menagainstbreastcancer.org
Mommy’s light lives On: mommyslight.org
Mothers Supporting Daughters with Breast Cancer: mothersdaughers.org
Financial Concerns
Association of Community Cancer Centers: accc-cancer.org Brenda Mehling Cancer Fund: bmcf.net (ages 18-40) Cancer Financial Assistance Coalition: cancerfac.org Centers for Medicare and Medicaid Services: cms.gov
Joe’s House: joeshouse.org
 Patient Services, Inc.: www.patientservicesinc.org
Social Security Disability Information: ssa.gov/dibplan/index.htm
General information and support
Abramson Cancer Center of the University of Pennsylvania: Oncolink.org
American Cancer Society: cancer.org, (800) 227-2345 Association of Cancer Online Resources: acor.org Breastcancer.org
CancerCare: cancercare.org, (800) 813-4673
 Cancer Support Community: cancersupportcommunity.org, (888) 793-9355
 Healing Circle: healingcircle.com
Healing Journeys: healingjourneys.org
 SHARE: sharecancersupport.org, (866) 891-2392
Susan G. Komen for the Cure: komen.org, (877) 465-6636 Triple-Negative Breast Cancer Foundation: tnbcfoundation.org, (877) 880-8622
 Wellspring Cancer Support: wellspring.ca
Legal information
Cancer legal Resource Center: cancerlegalresourcecenter.org cancerandcareers.org
Metastatic Breast Cancer
AdvancedBC.org
 AdvancedBreastCancerCommunity.org
BCmets.org 
BrainMetsBC.org 
living Beyond Breast Cancer: lbbc.org/Audiences/Metastatic- Breast-Cancer, (888) 753-lBBC (5222)
Metastatic Breast Cancer Network: mbcn.org
 METAvivor: metavivor.org
MetaCancer Foundation: metacancer.org
Patient Power: Understanding Advanced Breast Cancer Series: patientpower.info/program/the-treatment-landscape-for- metastatic-breast-cancer
Young women
Annual Conference for Young Women Affected by Breast Cancer: c4yw.org
Stupid Cancer: stupidcancer.org
Planet Cancer: planetcancer.org
Sharsheret: sharsheret.org, (866) 474-2774
 Young Adult Cancer Canada: youngadultcancer.ca
Young Survival Coalition: youngsurvival.org, (877) 972-1011


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